"My father died asking me for a glass of water": The lived experience of supporting a family member with dysphagia secondary to a progressive diagnosis.
Citation:
Warriner, N. & Walsh, I.P., ?My father died asking me for a glass of water?: The lived experience of supporting a family member with dysphagia secondary to a progressive diagnosis., 9th ESSD Congress Swallowing, Nutrition and Imaging, Vienna, Austria, 20-21 September 2019, 2019Download Item:
Abstract:
• The nature and presentation of oropharyngeal dysphagia
exists as a multifaceted entity. However, the effects of the
disorder are often cited as the physical manifestation with
which it is associated.
• Current guidelines highlight the importance of holistic,
person-centred care, and consideration of not only the
physical effects, but also the psychosocial impact of
dysphagia on the individual [1].
• Research in the area has confirmed that the effects of
dysphagia cannot be confined to physiological elements of
the condition, in that it affects day-to-day life, and overall
quality of life [2].
• With the effects of dysphagia being apparent in a person’s
everyday routine and indeed, social situations, the family
unit are also affected by the psychosocial impact of
dysphagia [3].
• As such, the current study explored the lived experience of
oropharyngeal dysphagia on family members who support
those living with the diagnosis.
Author's Homepage:
http://people.tcd.ie/ipwalshDescription:
PUBLISHEDVienna, Austria
Author: Walsh, Irene
Other Titles:
9th ESSD Congress Swallowing, Nutrition and ImagingType of material:
PosterAvailability:
Full text availableKeywords:
Dysphagia, Stroke, MND, Cancer, Family accountsSubject (TCD):
CancerMetadata
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