Swallowing Outcomes in Dysphagia in Children with Spinal Muscular Atrophy: Protocol for a scoping review
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Protocol or guidelineDate:
2024Author:
Walshe, MargaretAccess:
openAccessCitation:
Gandolfi S, Andriani C, Walshe M, Swallowing Outcomes in Dysphagia in Children with Spinal Muscular Atrophy: Protocol for a scoping review, 2024, 1 - 12Download Item:
Abstract:
Background: Spinal Muscular Atrophy (SMA) is a genetic
neuromotor disease characterized
by muscle weakness and atrophy.
Among the clinical manifestations,
swallowing difficulties can be associated with this disease and have
a significant impact on pulmonary
health, malnourishment, and aspi-
ration pneumonia.
Swallowing-related outcomes se-
lected for measurements differ from
protocol to protocol in clinical re-
search studies, which makes it hard
to identify commonalities across
different studies and apply standardized swallowing interventions.
Objective: This research aims
to explore the characteristics of
swallowing-related outcomes in
clinical research in children with
SMA to contribute to future research about dysphagia management in this population.
Methods: All research studies
exploring clinical interventions for
swallowing difficulties in children
below 18 years of age with dysphagia associated with SMA will be included. Five electronic databases
(EMBASE, CINAHL Complete,
PubMed, Web of Science, and
PsycInfo) will be searched, with no
restrictions on dates, language, or
type of study. Two independent reviewers will assess articles to meet
the following criteria: 1) dysphagia intervention studies in children
with SMA; 2) outcomes of dys-
phagia intervention; 3) methods of
measurement of outcomes; 4) time-
points and frequency of measurement.
Conclusions: Examining the
outcomes of dysphagia intervention
in children with SMA will help
identify the gaps in the literature
and raise awareness about the lack
of agreement in the management of
swallowing difficulties experienced
in this population, laying the foundations for future research to ex-
pose outcomes that are neglected.
Author's Homepage:
http://people.tcd.ie/walshemaDescription:
PUBLISHED
Author: Walshe, Margaret
Advisor:
Walshe, MargaretType of material:
Protocol or guidelineAvailability:
Full text availableKeywords:
Dysphagia, Spinal Muscular Atrophy, Rehabilitative Interventions, Outcomes, Scoping ReviewSubject (TCD):
Inclusive Society , DYSPHAGIA , Evidence based practice , Swallowing DisordersMetadata
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