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dc.contributor.authorDINSMORE, JOHNen
dc.contributor.authorMURPHY, EMMAen
dc.contributor.authorHANNIGAN, CAOIMHEen
dc.date.accessioned2017-11-09T16:29:08Z
dc.date.available2017-11-09T16:29:08Z
dc.date.created24th-27th Juneen
dc.date.issued2017en
dc.date.submitted2017en
dc.identifier.citationDinsmore J., Hannigan C., Murphy M., Kuiper J., Jacobs A., Smith S., Doyle J., The impact of carer 'shared (disease management) responsibility' on 'shared decision making' for older persons managing multimorbidity, European Journal of Neurology, 3rd Congress of the European Academy of Neurology, Amsterdam, Netherlands, 24th-27th June, 24, Supplement 1, 2017en
dc.identifier.otherYen
dc.identifier.urihttp://hdl.handle.net/2262/81986
dc.descriptionPUBLISHEDen
dc.descriptionAmsterdam, Netherlandsen
dc.description.abstractIntroduction: For older persons with multimorbidity (PwMs), self-management is a complex process that involves integration of knowledge and tasks for multiple, and often interacting, chronic diseases (1). Shared decision making (SDM) refers to clinicians working together with patients and/or their caregivers to decide which care plan best fits individual patients and their lives, when there is more than one reasonable option (2). The current study aimed to understand the role of caregiver support related to SDM for older PwMs (aged over 65). The data presented were collected as part of an extensive requirements gathering exercise to inform the design of ProACT, a digital health ecosystem that aims to support self-management and improve integration of care for older PwMs. Methods: Semi-structured qualitative interviews and focus groups were conducted with 38 older PwMs,17 informal carers and 22 formal care workers across the Irish and Belgian health systems. Interviews and focus groups were transcribed and analysed using thematic analysis. Results: PwMs in Belgium availed of higher levels of carer support and ‘shared responsibility’ for disease management with their carers. This was reported as having a potentially positive impact on SDM. Conclusion: Increased support from caregivers to PwMs may have a positive impact on improving SDM, due to the enhanced ‘shared responsibility’ between PwMs and carers to disease management. 1. Bayliss, E. A., Ellis, J. L., & Steiner, J. F. (2007). Barriers to self-management and quality-of-life outcomes in seniors with multimorbidities. Annals of Family Medicine, 5(5), 395–402. 2. Van der Flier, W.M., Kunnemann, M., Bouwman, F.H., Petersen, R.C., Smeets, E.M.A. (2017). Diagnostic dilemmas in Alzeimher’s disease: Room for shared decision making. Alzeimher’s and Dementia: Translational Research and Clinical Interventions, 3(3), 301-304.en
dc.language.isoenen
dc.relation.ispartofseries24en
dc.relation.ispartofseriesSupplement 1en
dc.rightsYen
dc.subjectDigital Health; Multimorbidity; Ageing; Chronic Diseaseen
dc.titleThe impact of carer 'shared (disease management) responsibility' on 'shared decision making' for older persons managing multimorbidityen
dc.title.alternativeEuropean Journal of Neurologyen
dc.title.alternative3rd Congress of the European Academy of Neurologyen
dc.typePublished Abstracten
dc.contributor.sponsorEuropean Commissionen
dc.type.supercollectionscholarly_publicationsen
dc.type.supercollectionrefereed_publicationsen
dc.identifier.peoplefinderurlhttp://people.tcd.ie/dinsmorjen
dc.identifier.peoplefinderurlhttp://people.tcd.ie/murphe50en
dc.identifier.peoplefinderurlhttp://people.tcd.ie/channigaen
dc.identifier.rssinternalid169204en
dc.relation.ecprojectidinfo:eu-repo/grantAgreement/EC/FP7/689996
dc.rights.ecaccessrightsopenAccess
dc.contributor.sponsorGrantNumber689996en
dc.subject.TCDThemeAgeingen
dc.subject.TCDThemeNeuroscienceen
dc.identifier.rssotherISSN 1351-5101(201706)24:6+1en
dc.identifier.rssuriISSN: 1351-5101(201706)24:6+1en
dc.identifier.orcid_id0000-0001-8387-3496en
dc.subject.darat_impairmentAge-related disabilityen
dc.subject.darat_impairmentChronic Health Conditionen
dc.subject.darat_thematicHealthen
dc.status.accessibleNen


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