The impact of carer 'shared (disease management) responsibility' on 'shared decision making' for older persons managing multimorbidity
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Dinsmore J., Hannigan C., Murphy M., Kuiper J., Jacobs A., Smith S., Doyle J., The impact of carer 'shared (disease management) responsibility' on 'shared decision making' for older persons managing multimorbidity, European Journal of Neurology, 3rd Congress of the European Academy of Neurology, Amsterdam, Netherlands, 24th-27th June, 24, Supplement 1, 2017Download Item:
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Abstract:
Introduction: For older persons with multimorbidity (PwMs), self-management is a complex process that involves integration
of knowledge and tasks for multiple, and often interacting, chronic diseases (1). Shared decision making (SDM) refers to clinicians working together with patients and/or their caregivers to decide which care plan best fits individual patients and their lives, when there is more than one reasonable option (2). The current study aimed to understand the role of caregiver support related to SDM for older PwMs (aged over 65). The data presented were collected as part of an extensive requirements gathering exercise to inform the design of ProACT, a digital health ecosystem that aims to support self-management and improve integration of care for older PwMs. Methods: Semi-structured qualitative interviews and focus
groups were conducted with 38 older PwMs,17 informal carers and 22 formal care workers across the Irish and Belgian health
systems. Interviews and focus groups were transcribed and analysed using thematic analysis. Results: PwMs in Belgium availed of higher levels of carer support and ‘shared responsibility’ for disease management with their carers. This was reported as having a potentially positive impact on SDM. Conclusion: Increased support from caregivers to PwMs may
have a positive impact on improving SDM, due to the enhanced ‘shared responsibility’ between PwMs and carers to disease
management. 1. Bayliss, E. A., Ellis, J. L., & Steiner, J. F. (2007). Barriers to self-management and quality-of-life outcomes in seniors with multimorbidities. Annals of Family Medicine, 5(5), 395–402. 2. Van der Flier, W.M., Kunnemann, M., Bouwman, F.H., Petersen, R.C., Smeets, E.M.A. (2017). Diagnostic dilemmas in Alzeimher’s disease: Room for shared decision making. Alzeimher’s and Dementia: Translational Research and Clinical Interventions, 3(3), 301-304.
Sponsor
Grant Number
European Commission
689996
Author's Homepage:
http://people.tcd.ie/dinsmorjhttp://people.tcd.ie/murphe50
http://people.tcd.ie/channiga
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PUBLISHEDAmsterdam, Netherlands
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European Journal of Neurology3rd Congress of the European Academy of Neurology
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Published AbstractCollections:
Series/Report no:
24Supplement 1
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Full text availableSubject (TCD):
Ageing , NeuroscienceLicences: