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dc.contributor.authorTIMONEN, VIRPIen
dc.contributor.authorFOLEY, GERALDINEen
dc.contributor.authorHARDIMAN, ORLAen
dc.date.accessioned2013-08-26T15:34:36Z
dc.date.available2013-08-26T15:34:36Z
dc.date.issued2012en
dc.date.submitted2012en
dc.identifier.citationFoley G, Timonen V, Hardiman O., Experience of services as a key outcome in amyotrophic lateral sclerosis (ALS) care. The case for a better understanding of patient experiences, American Journal of Hospice and Palliative Medicine, 29, 5, 2012, 362 - 367en
dc.identifier.otherYen
dc.identifier.urihttp://hdl.handle.net/2262/67249
dc.descriptionPUBLISHEDen
dc.description.abstractPeople with amyotrophic lateral sclerosis (ALS) frequently express dissatisfaction with services. Patient satisfaction with services in ALS is not always measured and service user perspectives are not usually included when evaluating outcomes of care. There is a lack of consensus on what constitutes satisfaction for patients in ALS care. To date, healthcare professionals? conceptualisation of outcomes in ALS care has excluded measures of patient satisfaction with services. Exploring the context of the ALS service user experience of care will identify a conceptual framework that will include the domains of satisfaction with care for patients with ALS. An instrument that draws on the ALS patient perspective of services, developed on the basis of qualitative investigation, should be used to measure satisfaction with services.en
dc.description.sponsorshipHealth Research Board of Irelanden
dc.format.extent362en
dc.format.extent367en
dc.language.isoenen
dc.relation.ispartofseriesAmerican Journal of Hospice and Palliative Medicineen
dc.relation.ispartofseries29en
dc.relation.ispartofseries5en
dc.rightsYen
dc.subjectamyotrophic lateral sclerosisen
dc.subjectmotor neurone diseaseen
dc.subjectoutcomesen
dc.subjectmultidisciplinaryen
dc.subjectsatisfactionen
dc.subjectservicesen
dc.subjectexperiencesen
dc.titleExperience of services as a key outcome in amyotrophic lateral sclerosis (ALS) care. The case for a better understanding of patient experiencesen
dc.typeJournal Articleen
dc.type.supercollectionscholarly_publicationsen
dc.type.supercollectionrefereed_publicationsen
dc.identifier.peoplefinderurlhttp://people.tcd.ie/foleyg3en
dc.identifier.peoplefinderurlhttp://people.tcd.ie/hardimaoen
dc.identifier.peoplefinderurlhttp://people.tcd.ie/timonenven
dc.identifier.rssinternalid76406en
dc.identifier.doihttp://dx.doi.org/10.1177/1049909111423774en
dc.subject.TCDThemeInclusive Societyen
dc.identifier.orcid_id0000-0001-7952-9246en


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