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dc.contributor.authorElliott, Naomien
dc.contributor.authorHiggins, Agnesen
dc.date.accessioned2020-02-28T16:52:25Z
dc.date.available2020-02-28T16:52:25Z
dc.date.issued2019en
dc.date.submitted2019en
dc.identifier.citationHiggins A, Downes C, Varley J, Doherty C, Begley C, Elliott N, Supporting and empowering people with epilepsy: Contribution of the Epilepsy Specialist Nurses (SENsE study), Seizure: European Journal of Epilepsy, 71, 2019, 42 - 49en
dc.identifier.issn1059-1311en
dc.identifier.otherYen
dc.identifier.urihttps://www.sciencedirect.com/science/article/pii/S1059131119302675?via%3Dihub
dc.identifier.urihttp://hdl.handle.net/2262/91658
dc.descriptionPUBLISHEDen
dc.descriptionhttps://doi.org/10.1016/j.seizure.2019.06.008en
dc.description.abstractPurpose: To explore how Epilepsy Specialist Nurses in the Republic of Ireland enacted their clinical role. Methods: Qualitative descriptive design that involved individual and focus group interviews, observation and documentary analysis. Data were collected from 12 Epilepsy Specialist Nurses working in five hospital-based epilepsy services in Ireland, 24 multidisciplinary team members, and 35 people with epilepsy and their family members were involved. Data were analysed in NVivo using an inductive and deductive approach. Results: Epilepsy Specialist Nurses work out of a value base that gives primacy to collaboration. active participation, relationship-based care, and respect for the voices of PWE and family members. They are key players in empowering people to self-manage their illness, Core dimensions of their clinical role includes: performing a comprehensive assessment to inform care and treatment; providing person-centred education; monitoring the impact of care and treatment; providing education to family members and significant others; providing psychosocial care to optimise psychological wellness; co-ordinating care to enhance patients’ journey; and quality assuring patient information. Conclusion: Findings from this study highlight the key role ESNs played as members of the MDT in building and supporting PWE’s capacity to self-manage their illness. However, they also indicate deficits in the provision of information on sudden unexpected death in epilepsy and how to disclose a diagnosis of epilepsy by the ESN, as well deficits in their knowledge and confidence in supporting people experiencing significant mental health morbidities.en
dc.format.extent42en
dc.format.extent49en
dc.language.isoenen
dc.relation.ispartofseriesSeizure: European Journal of Epilepsyen
dc.relation.ispartofseries71en
dc.relation.urihttps://doi.org/10.1016/j.seizure.2019.06.008en
dc.rightsYen
dc.subjectEpilepsyen
dc.subjectAdvanced practiceen
dc.subjectNurse specialisten
dc.subjectClinical roleen
dc.subjectSelf-managementen
dc.titleSupporting and empowering people with epilepsy: Contribution of the Epilepsy Specialist Nurses (SENsE study)en
dc.typeJournal Articleen
dc.type.supercollectionscholarly_publicationsen
dc.type.supercollectionrefereed_publicationsen
dc.identifier.peoplefinderurlhttp://people.tcd.ie/elliotnen
dc.identifier.peoplefinderurlhttp://people.tcd.ie/ahigginsen
dc.identifier.rssinternalid204990en
dc.rights.ecaccessrightsopenAccess
dc.relation.citesCitesen
dc.identifier.rssurihttps://doi.org/10.1016/j.seizure.2019.06.008en
dc.identifier.orcid_id0000-0002-0048-9825en
dc.subject.darat_impairmentEpilepsyen
dc.status.accessibleNen


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