Transitioning of young people (with longterm illnesses) from child to adult healthcare services,
Citation:
Coyne I, Sheehan A & While A, Transitioning of young people (with longterm illnesses) from child to adult healthcare services,, Journal of Adolescent Health, Society for Adolescent Health and Medicine (SAHM), Los Angeles, USA, March 18-21st, 56, 2S1, Elsevier, 2015, 1 - 129Download Item:

Abstract:
Purpose:
To obtain a comprehensive
understanding of the experiences of young
people and their families transitioning from child to adult healthcare services in
Ireland, and to identify factors associated with smooth and successful transitions.
Methods:
Semi
-
structured interviews were cond
ucted with young people aged 14
-
25 years with one of three conditions (type 1 diabetes, cystic fibrosis, or congenital
heart disease) (n=50), their parents (n=37), and healthcare professionals (n=34).
Ethical approval was granted by ethics committees at Tr
inity College Dublin and the
hospital sites. The data were analysed using thematic analysis and managed with
Nvivo(version 10).
Results:
Transition was experienced on a continuum from smooth to traumatic.
Adjusting to environmental and cultural difference
s in adult healthcare services was
overwhelming for some young people and their families, while others welcomed the
young person’s enhanced responsibility and autonomy. The negotiation of healthcare
management roles between young people, parents, and new h
ealthcare professionals
was a complex and dynamic process. Inadequate communication prior to transition
and discordant familial relationships impacted negatively on the transition experience.
Smooth transitions were experienced where young people had devel
oped adequate
self
-
care and self
-
efficacy skills; families had positive attitudes, emotions, and beliefs
regarding transition; there was effective information
-
sharing and communication; and
where staff were sensitive to the patient journey and the shared i
llness ownership felt
by young people and their families.
Conclusions:
The transition from child to adult healthcare services is a complex,
dynamic process strongly influenced by information
-
sharing practices and shared
decision
-
making. Facilitators of s
mooth transitions should be incorporated into
healthcare practices and policies.
Sponsor
Grant Number
Health Research Board (HRB)
coynei_HRB_HRA_HSR/2010/7
Author's Homepage:
http://people.tcd.ie/coyneiDescription:
PUBLISHEDLos Angeles, USA
Author: COYNE, IMELDA
Other Titles:
Journal of Adolescent HealthSociety for Adolescent Health and Medicine (SAHM)
Publisher:
ElsevierType of material:
Published AbstractCollections:
Series/Report no:
562S1
Availability:
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